Physical training in boys with Duchenne Muscular Dystrophy: the protocol of the No Use is Disuse study.
Jansen M, de Groot IJ, van Alfen N, Geurts AC.
BMC Pediatr 2010. 10: 55.
The protocol of the NUD (No Use is disuse) study aims to assess whether a low-intensity physical training in DMD patients is beneficial in terms of preserving muscle endurance and functional abilities. The MFM is used as a primary outcome of the study to assess the functional capacity of the DMD patients.
Keywords: Duchenne Muscular Dystrophy, Physical activity, Outcome measure, Protocol, Clinical trial
Articles dans les revues scientifiques
Diaphragmatic dysfunction in Collagen VI myopathies
Quijano-Roy S, Khirani S, Colella M, Ramirez A, Aloui S, Wehbi S, de Becdelievre A, Carlier RY, Allamand V, Richard P, Azzi V, Estournet B, Fauroux B. Neuromuscul Disord. 2014. 24(2):125-33. A pilot study aimed at characterizing the respiratory muscle phenotype in...
Hammersmith Functional Motor Scale and Motor Function Measure-20 in non ambulant SMA patients
E. Mazzone, R. De Sanctis, L. Fanelli, F. Bianco, M. Main, M. van den Hauwe, M. Ash, R. de Vries, J. Fagoaga Mata, K. Schaefer, A. D’Amico, G. Colia, C. Palermo, M. Scoto, A. Mayhew, M. Eagle, L. Servais, M. Vigo, A. Febrer, R. Korinthenberg, M. Jeukens M. de Viesser,...
Création et validation d’une classification en grade de sévérité dans les maladies neuromusculaires : la classification NM-Score
Vuillerot C, Rippert P, Roche S, Bérard C, Margirier F, de Lattre C, Poirot I, Berruyer A, Tiffreau V, Fournier-Mehouas M, Bouhour F, Urtizberea JA, Renders A, Ecochard R; Le groupe d’étude NM-Score. Ann Phys Rehabil Med. 2013. 56(9-10):673-86. Development of a...
Rasch analysis of clinical outcome measures in spinal muscular atrophy
SJ. Cano, A. Mayhew, AM. Glanzman, KJ. Krosschell, KJ. Swoboda, M. Main, BF. Steffensen, C. Bérard, F. Girardot, CA. Payan, E. Mercuri, E. Mazzone, B. Elsheikh, J. Florence, LS. Hynan, ST. Iannaccone , LL. Nelson, S. Pandya, M. Rose, C. Scott, R. Sadjadi, MA. Yore, C....
Gait energy expenditure in children with Duchenne muscular dystrophy: case study
de Souza MA, Ferreira ME, Rogean de Jesus Alves de Baptista C, Mattiello Sverzut AC. Fisioter Pesq. 2014. 21(2):193-198. Energy expenditure of 3 children (6, 7 and 8 years old) with MFM scores between 61.5 and 71.7% was calculated using gait heart rate (HR).Results...
Physiotherapy Intervention in Nemaline Myopathy – Case Report
Furlaneto B, Valenciano P, Zechim F, Alves E. Revista Neurociências. 2014. 22(1):59-65. This report provides an understanding of the clinical evolution and prognosis of a Nemaline Myopathy (NM) patient compared with the literature.Physiotherapeutic interventions were...