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MFM - nmd

Health-related quality of life, self-reported impairments and activities of daily living in relation to muscle function in post-polio syndrome

Jul 28, 2020 | Articles dans les revues scientifiques, Publications

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Effects of nusinersen after one year of treatment in 123 children with SMA type 1 or 2: a French real-life observational study

Jul 17, 2020 | Articles dans les revues scientifiques, Publications

Effects of nusinersen after one year of treatment in 123 children with SMA type 1 or 2: a French real-life observational study Audic F, de la Banda MGG, Bernoux D, Ramirez-Garcia P, Durigneux J, Barnerias C, Isapof A, Cuisset JM, Cances C, Richelme C, Vuillerot C,...

Long-term benefit of enzyme replacement therapy with alglucosidase alfa in adults with Pompe disease: prospective analysis from the French Pompe Registry

Jul 17, 2020 | Articles dans les revues scientifiques, Publications

<Back to Publications Long-term benefit of enzyme replacement therapy with alglucosidase alfa in adults with Pompe disease: prospective analysis from the French Pompe Registry Semplicini C, De Antonio M, Taouagh N, Béhin A, Bouhour F, Echaniz-Laguna A, Magot A,...

Muscle MRI: A biomarker of disease severity in Duchenne muscular dystrophy? A systematic review

Apr 1, 2020 | Articles dans les revues scientifiques, Publications

<Back to Publications Muscle MRI: A biomarker of disease severity in Duchenne muscular dystrophy? A systematic review Ropars J, Gravot F, Ben Salem D, Rousseau F, Brochard S, Pons C. Neurology. 2020. 94(3):117-133. Review to assess the evidence of a relationship...

Evaluation of Speed-Accuracy Trade-Off in a Computer Task to Identify Motor Difficulties in Individuals With Duchenne Muscular Dystrophy – A Cross-Sectional Study

Mar 31, 2020 | Articles dans les revues scientifiques, Publications

<Back to Publications Evaluation of Speed-Accuracy Trade-Off in a Computer Task to Identify Motor Difficulties in Individuals With Duchenne Muscular Dystrophy – A Cross-Sectional Study da Silva TD, Ribeiro-Papa DC, Coe S, Malheiros SRP, Massetti T, Meira...

Timed immersion expiration measures in patients with muscular dystrophies

Mar 31, 2020 | Articles dans les revues scientifiques, Publications

<Back to Publications Timed immersion expiration measures in patients with muscular dystrophies Voos MC, Goya PSA, de Freitas BL, Pires AMT, Favero FM, Caromano FA. Arch Physiother. 2020 18;10:4. doi: 10.1186/s40945-020-0074-3. eCollection 2020. The aim of the...
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Recent Posts

  • How to Best Measure Disease Progression in Adult Spinal Muscular Atrophy Patients: A Clinical and Neurophysiological Study
  • Rasch analysis to evaluate the motor function measure for patients with facioscapulohumeral muscular dystrophy
  • Assessment of the validity and reliability of the 32-item Motor Function Measure in individuals with Type 2 or non-ambulant Type 3 spinal muscular atrophy
  • Assessment of respiratory muscles and motor function in children with SMA treated by nusinersen
  • Association Between Health-Related Quality of Life and Motor Function in Ambulant and Nonambulant Duchenne Muscular Dystrophy Patients

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