English cross-cultural translation and validation of the NM-Score: a system for motor function classification in patients with neuromuscular diseases
Vuillerot C, Meilleur KG, Jain M, Waite M, Wu T, Linton M, Datsgir J, Donkervoort S, Leach ME, Rutkowski A, Rippert P, Payan C, Iwaz J, Hamroun D, Bérard C, Poirot I, Bönnemann CG.
Arch Phys Med Rehabil. 2014. 95(11):2064-2070.e1.
Developement of an English version of the NM-Score. Its concurrent validity was tested in 42 patients aged 5 to 19 years old with a confirmed or suspected diagnosis of congenital muscular dystrophy against criterion standards (Brooke, MFM, Activlim, Jebsen Test, and myometry). Informant agreements between patient-reported and clinician-reported NM-Score were measured by weighted Kappa. Significant correlation coefficients were found between NM-Score and criterion standards MFM D1, Activlim and Hip abduction. Informant agreements between clinician- and patient-reported NM scores were excellent for D1 but moderate for D2 and D3. The English version is thus a reliable and valid instrument that can be used in clinical practice and research to describe the functional abilities of patients with neuromuscular diseases.
Keywords: Neuromuscular diseases, activities of daily living, disability evaluation, rehabilitation
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